What do service users and carers want?

Service users and carers consistently highlight the importance of physical health needs and the relative neglect of them by services. Often this is stigma-related – assumptions are made that physical symptoms experienced are psychologically determined and screening and investigation is either not done or done inadequately.

Service user views of current medication, e.g. antipsychotics and mood stabilisers, are often negative even though they may accept the need to take them. Of those settled on the former, 70% discontinued them over an eighteen month period.  There is a view that effectiveness has been over- and adverse effects under-stated and that choice of intervention needs to be widened.